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 Cystic fibrosis(65 roses)

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.::Phantom Jr::.

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Female Number of posts : 380
Age : 25
Registration date : 2006-09-04

PostSubject: Cystic fibrosis(65 roses)   Mon Oct 09, 2006 9:24 pm

( www.CFF.org )

My friend has it...she's had it forever and i found out three years ago...when she was in the hostpital, i never really thought about it as real life thretening desese...until now. I never really wanted to think about it as a desease...let alone life thretaning...but now i do...and it's scary Crying or Very sad but she carries herself so well...she's got more friends than i do, she dates many guys, she's very social, she acts like there's no such thing as CF. I'm kinda the one crying over it...and i don't have CF.

She just got out of the hosptial(she has to stay there about twice a year, i'm friends with all her nurses...they favor her and bring her things...she knows them all too well) and i've been doing reasurch...

How Long do Patients with Cystic Fibrosis Live?

Some patients die early in childhood; others survive to their 40s or 50s. Most patients develop increasing problems as they get older. Patients with cystic fibrosis dying today average 31 years of age, but patients with cystic fibrosis born today can expect to live longer as treatment improves.

So i really don't know what to do...all of it really hit me today...I just started crying...

Does any one else know some one who has cystic fibrosis?

Me and my friend were talking about her having CF and she wants to make a list of things to do before she dies...

She is about 12 and I kno that is a little while away from...i dunno 30's-50's but i just...worry about her...i'm a better mother than her mother...i really am, and my mom acts as hers to...

I'm sorry this topic is kinda pointless to post here but i really just...i just i dunno...i thought i'd share....
Crying or Very sad


Last edited by on Mon Oct 09, 2006 10:04 pm; edited 1 time in total
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viol8r
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Female Number of posts : 1462
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Registration date : 2006-08-24

PostSubject: Re: Cystic fibrosis(65 roses)   Mon Oct 09, 2006 9:30 pm

it's not pointless at all. sometimes it feels better to talk about things like this.

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.::Phantom Jr::.

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Female Number of posts : 380
Age : 25
Registration date : 2006-09-04

PostSubject: Re: Cystic fibrosis(65 roses)   Mon Oct 09, 2006 9:34 pm

*Sigh* thank you. you really are an awesome admin.
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StephBev

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Female Number of posts : 147
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PostSubject: Re: Cystic fibrosis(65 roses)   Mon Oct 09, 2006 9:57 pm

I've never heard about it. I'm gonna look into it right... now.

And, no, this is definately not a pointless topic.
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.::Phantom Jr::.

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Female Number of posts : 380
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PostSubject: Re: Cystic fibrosis(65 roses)   Mon Oct 09, 2006 10:03 pm

...i guess i'm kinda used to the harshness of the OMB...

thanks!

i have a blue wrist band for cf...it says breath

www.CFF.org

a good website to look into
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.::Phantom Jr::.

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Female Number of posts : 380
Age : 25
Registration date : 2006-09-04

PostSubject: Re: Cystic fibrosis(65 roses)   Wed Oct 11, 2006 9:09 pm

semore the pupet says bump for the power of CF



Cystic fibrosis (CF) is a life-threatening genetic disease affecting approximately 30,000 people in the United States. For people with the disease, a defective gene causes the body to produce a faulty protein that leads to abnormally thick, sticky mucus that clogs the lungs and can result in fatal lung infections. The mucus also obstructs the pancreas, causing difficulty for a person to absorb nutrients in food and can block the bile duct in the liver, eventually causing permanent damage in approximately six percent of people with CF
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